Adalia Rose Williams, a teen YouTuber who lived with Hutchinson-Gilford progeria syndrome, has died. She was 15 years old.
“January 12, 2022 at 7pm Adalia Rose Williams was set free from this world,” a post on both her Instagram and Facebook accounts started. “She came into it quietly and left quietly, but her life was far from it. She touched MILLIONS of people and left the biggest imprint in everyone that knew her.”
“She is no longer in pain and is now dancing away to all the music she loves,” the post continued. “I really wish this wasn’t our reality but unfortunately it is.”
“We want to say thank you to everyone that loved and supported her. Thank you to all her doctors and nurses that worked for YEARS to keep her healthy. The family would now like to mourn this huge loss in private,” the statement concluded.
According to the National Organization of Rare Disorders (NORD), “Progeria, or Hutchinson-Gilford progeria syndrome (HGPS), is a rare, fatal, genetic condition of childhood with striking features resembling premature aging.” The organization notes that there are only around 400 children in the world living with progeria at any given time.
https://www.youtube.com/c/AdaliaRoseBudd/videos Adalia Rose Youtube Channel